A close friend sent this verse to me in an email after she heard the news about our baby boy. As it pertains to Baby Rich, it is a great comfort in knowing that God knows the severity of the hernia and every other little issue that goes along with it. This is why we ask that you pray for the doctors, surgeons, nurses, and everyone who will come in contact with our little boy—that they may have wisdom in knowing what is wrong and discernment in knowing how to handle the problems.
I tell you this because today—like every other Monday—was busy with phone calls and emails but at the end of the day I feel like nothing was really accomplished. I didn’t confirm an appointment with Dr. Kays—although I spoke to his assistant who is going to try and work us in but we might not be able to see him until August. This is not good because for them to do the exam that gives us a head-to-lung ratio (which is important in determining the amount of lung tissue that has developed already) it needs to be between 23 and 26 weeks gestation. Well, I’ll be 26 weeks on August 2—so unless they can work me in beforehand, we won’t have that extra bit of information—but thankfully, "nothing in all creation is hidden from God's sight...”
Later I spoke with Pat—she is sort of like my “case manager”—not really, but she is definitely my “go to” person for making appointments with UAB/Childrens. I had called her because the assistant for my pediatric surgeon never called me on Friday to confirm an appointment and when I tried to reach her they said she “would be out for a while.” That wasn’t very comforting, so I telephoned Pat and she got right on things. She called back like a nano-second later and said she had worked things out and that I would have a consultation next Monday but with a different pediatric surgeon. First let me say—I have heard great things about all of the surgeons—but I was disappointed because the original doctor that I had happened to be the one person Dr. Kays named as being a great doctor for my baby should I stay in Birmingham. As I spoke to a friend this afternoon, it occurred to me--"nothing in all creation is hidden from God's sight”—nothing is hidden—including doctors’ schedules. This doesn’t mean that I am not going to try and get that original doctor again—I’ll see what “strings” I can find to pull (ha! If you work at Children’s or are a doctor—I’ll be calling you for this favor!)—but if at the end of the day I can’t get him, I’ll feel confident I did what I could and just trust.
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3 comments:
I really like that verse. Another one I like is Psalm 139:13, "For you formed my inward parts; you knitted me together in my mother's womb."
I hope you get the appointment with Dr. Kays before August, and that you also get a consultation with the pediatric surgeon in Bham that you wanted.
Liz,
That is a beautiful verse and so appropriate. It can be frustrating with the doctors because often they work in teams and you just don't know who will be on the schedule when you go in. At least at Hopkins they told us that they make all big decisions as a committee which is reassurring. As for the LHR - we had that done after the MRI but we were warned that it was still so early at that point because things can shift up or down a lot before birth. Be careful about putting too much weight in those #s. Of course I say that to you but I know I cling to these #s myself ;-) The other thing I just learned is that Boston Children's does something called a lung volume estimate that is supposed to be a better predictor of lung function. I'm going to look into that (I'll let you know).
Good luck getting in with Dr. Kays and with the rest of your evaluation. I'll keep you and the baby in my prayers!
~Vicki
Liz and Rusty-I just found out. I would give you a call in skinny minute, but I'm sure you're quite busy. It might be cliche, but you really are in my thoughts and prayers (along with all those doctors, etc). Love you guys.
Corbett
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