Tuesday, November 27, 2007

Who's in Charge?



Who's in charge? Par is in charge! He told us loud and clear that he did not need his CPAP anymore! When we arrived this morning he was wearing the CPAP gear--but even his nurse didn't notice that he had cleverly slid the nose prongs out and they were just propped next to his nose. No wonder he was being so good and quiet. But then a nurse across the way heard us talking about it and came over and stuck them back in--so of course, he got upset. He has the cutest "mad" face--it isn't "sad"--it is definitely VERY mad and you can't help but laugh at him when he is crying--he is already way too spoiled. In fact, at this point if you stand at his bed you have to either be holding his pacifier in or playing with his monkey toes--and sometimes you have to do both at the same time. I am guessing that is because his feet were the only thing we could touch for a while, he still finds comfort in us touching them.



Dr. Kays came over after lunch and wrote the order to have Par taken off CPAP and put on nasal cannula ASAP--and yes, we have video of this momentous event. We let Par take the CPAP off himself since he is so good at doing it. Dr. Kays also wrote an order to have the UA line removed (yay!) and he doesn't have the tube down his throat except when he is fed (which still hasn't happened yet). Additionally, they discontinued all of his medicines except his fetanyl and lasix. He is slowly but surely losing all of his lines because he is doing so well--we give glory to our Lord for such remarkable steps forward Par has taken. We understand he may start trying to eat tomorrow--so we'll see. Please pray that he will not have any reflux issues.



While we visited, Par decided to show us his new trick of crossing his eyes (which freaks me out--but yes, I realize this is normal for babies to do). Anyway, Mom and Rusty thought it was funny and they tried to get some good pictures of him.



Par had a big day--and he was up the entire time. When we went to say goodnight and read him his bedtime prayer around 10pm he was sort of awake but drifted off by the time we left.

Please continue to pray for Jonathan as his repair surgery is still scheduled for tomorrow morning. Ella is having an xray tomorrow which will be part of determining if she is ready to be extubated--we just ask for God's perfect timing for extubation and we thank Him for Ella's successful feeds.

May God bless you.
Liz, Rusty & CPAP-free Par

14 comments:

Anonymous said...

I love seeing so much of Par's sweet little face!! I also think the last picture of him is ADOREABLE!! More progress every day!! Par is quite a trooper!!!!

Love and prayers,
Zandra

Anonymous said...

Go Par Go!!!! It is wonderful to see his face. He is the most beautiful baby. Have another great day. Love and Blessings, Sheila

Cindy said...

Par is SO CUTE! I hope the feeding goes well and that he doesn't have reflux.

Anonymous said...

Liz I love his pictures! I am thrilled that he is making such fast progress. Can't wait to hear of today triumphs. God bless Allison

Anonymous said...

Par is the best! What a trooper! I am so proud of him, God is so good! We pray for your family every day. love, erin

Anonymous said...

Golly ding but that boy looks like his Daddy did as a baby! He is so cute. Please give him a little love touch for Aunt Judy from NC.

Love to all - I'm so proud of you.

Anonymous said...

I just read quite a few posts all at one time, he just keeps on moving, Go Par!! He is so beautiful. It was so sweet to see pictures of you holding him. What determination. He is going to be able to accomplish anything he sets out to do. I can't wait to see what he does today! Continued Love and Prayers,
Stephanie

Anonymous said...

What a blessing! It is so great to see Par's sweet face without all those tubes. He is so beautiful!

Of course, prayers and thoughts continue.

Peace,

Anne & Bob

Betsy Dellinger said...

What a beautiful and precious face that he has been hiding behind all those tubes. I pray God will continue to work mightily in your lives.

Anonymous said...

Yeah Par!!! Sarah just saw his picture and said, "Aaawww, he's so cute! He has a lot of hair." I told Julie last night that I thought Par looked like Rusty in the eyes! She said absolutely! It's fun to see more and more of him as the tubes and tape dwindle away! Praising the Lord for his progress, Bess

Vicki Jensen said...

CONGRATS! Par looks even more handsome without the CPAP!
Vicki

Anonymous said...

Every night before I go to bed I read about Par's update for the day. What an adorable little angel and how blessed he is to have parents like Rusty and Liz. I feel like I am right there with him and in my prayers I am. God continue to bless you all. Carolyn from SC.

Anonymous said...

It's so great to see all of his beautiful little face! He is so cute!
love,
Kelly & Josh

charlotte said...

ok liz, you were right... par IS
rusty... i can't get over it! i am so
thrilled that he is doing so well...
i am praying for ella, jonathan, and
the 2 new CDH babies along with
par!
love you...char