Who's in Charge?

Who's in charge? Par is in charge! He told us loud and clear that he did not need his CPAP anymore! When we arrived this morning he was wearing the CPAP gear--but even his nurse didn't notice that he had cleverly slid the nose prongs out and they were just propped next to his nose. No wonder he was being so good and quiet. But then a nurse across the way heard us talking about it and came over and stuck them back in--so of course, he got upset. He has the cutest "mad" face--it isn't "sad"--it is definitely VERY mad and you can't help but laugh at him when he is crying--he is already way too spoiled. In fact, at this point if you stand at his bed you have to either be holding his pacifier in or playing with his monkey toes--and sometimes you have to do both at the same time. I am guessing that is because his feet were the only thing we could touch for a while, he still finds comfort in us touching them.



Dr. Kays came over after lunch and wrote the order to have Par taken off CPAP and put on nasal cannula ASAP--and yes, we have video of this momentous event. We let Par take the CPAP off himself since he is so good at doing it. Dr. Kays also wrote an order to have the UA line removed (yay!) and he doesn't have the tube down his throat except when he is fed (which still hasn't happened yet). Additionally, they discontinued all of his medicines except his fetanyl and lasix. He is slowly but surely losing all of his lines because he is doing so well--we give glory to our Lord for such remarkable steps forward Par has taken. We understand he may start trying to eat tomorrow--so we'll see. Please pray that he will not have any reflux issues.



While we visited, Par decided to show us his new trick of crossing his eyes (which freaks me out--but yes, I realize this is normal for babies to do). Anyway, Mom and Rusty thought it was funny and they tried to get some good pictures of him.



Par had a big day--and he was up the entire time. When we went to say goodnight and read him his bedtime prayer around 10pm he was sort of awake but drifted off by the time we left.

Please continue to pray for Jonathan as his repair surgery is still scheduled for tomorrow morning. Ella is having an xray tomorrow which will be part of determining if she is ready to be extubated--we just ask for God's perfect timing for extubation and we thank Him for Ella's successful feeds.

May God bless you.
Liz, Rusty & CPAP-free Par