We are so thankful for our son and so thankful for the prayers for his healing from all of our friends, family & those we've never met. We are overwhelmed by the outpouring of love--but trust that your thoughts and prayers have not been in vain--our child truly is a gift of our Father and our prayer is that his life may help bring others closer to our Lord. It is so true--for this child, we have prayed many days and nights. Rusty and I were remembering how just 3.5 weeks ago, we had one eye on our critically ill baby and one eye on this machine that we really didn't understand completely. We prayed for every single digit that his saturations needed to rise to keep Par off ECMO. Today, his saturations are still very important--but we barely pay attention to them (by the way, they stay at 100 most of the time). His steps have been remarkable--we praise God for his progress.
Par has done well eating--but he isn't quite there yet--he is still a little confused about why when he sucks this "pacifier" liquid comes out. He gets the cutest little look on his face. Because of his good feeding yesterday, Par's feeds were upped to 5cc's of breast milk every three hours throughout the day. Our main issue has been that he gets WAY too comfortable and snuggly when I'm holding him and he falls right to sleep. Of course, I absolutely love that he loves being close to his mama--but he needs to eat when I feed him--that is our ticket out of here! We had a great nurse today who thinks Par is going to be on full feeds before we know it (really, she is just speaking in very positive terms)--but I love hearing that he is doing well--even with our little sleepy issue.
As usual, I spent some time telling Par about Birmingham and our house that he is going to live in when we get home. Below you can see the reaction when I told him about how if he works on feeding then we may be home by Christmas--and if he doesn't--he might have to have another surgery. I think he understands the seriousness of the situation now--thank goodness.
We still are in NICU 3--and just like yesterday, our move is expected at any time now. We could possibly go in tomorrow to find him moved. Mom and I toured the NICU 2--it seems very empty compared to where we are--but that can change very quickly. It was pretty quiet and less action. Although I may not be ready for the move--I pray that Par is--although when I told him about it, he immediately tried to hide-- (see picture below)--but I told him they'd probably find him anyway. (Isn't he precious!)
Par is four weeks old today--I can't believe it has been that long--it seems like everything just happened. Praise God that we have our precious baby.
We continue to pray for the health and healing of Par's friends.
Much Love,
Liz, Rusty & Par
8 comments:
Par is an absolute doll baby!! He really is so cute!! I am so glad he is doing so well with feeding!!
Love and prayers,
Zandra
P.S. To keep her awake, we used to tickle Em's feet if she fell asleep nursing. Maybe it could help with Par.
hey liz, rusty, and the litle sweetheart par. I can understand where you would feel and wonder if peoples prayers were in vain, but i know that from this housthey are not in vain,and he is just so precious and i just love seeing his pics, and i pray that he will continue to do good on his feeding. GO PAR GO.
Rusty and Liz,
God has not only blessed you all with this sweet baby boy, but also a fabulous positive sense of humor. I love reading about Par's adventures each day! Thanks for sharing the great pics. Bebe loves seeing them every day. She really understands who she is praying for each night.
love to all - leslee and family
Liz, Rusty, you are so blessed!! Par is precious, and so cute. He looks just like his dad. Thank you so much for sharing w/us his progress. We continue to ask the Lord's blessings on you all, and on Par's little friends and their families. In His own time, His will be done.
Love you guys,
Jim & Sheila
I LOVE the pictures, he is so precious. I have been sharing with everyone at work and they even think he looks like his dad! (but that can change, mom) Don't worry, sleepy Par will wake up, we used to have to totally undress Jacob while feeding, so he would stay awake. If anyone questions where or not there is a God, all they need to do is look at Par, and there is no doubt, The One and Only True God has HIS hands on him. Continued prayer for Par and ALL his friends.
Stephanie
Rejoicing with you for Par's progress. Praise God that he's feeding well. Miss you guys.
-Josh
Ok so Liz and Rusty, I have done very well this week to not cry at the amazing progress Par has made but today you got me. God is so good. Liz most babies fall asleep while feeding I am sure you have been told. Both of mine did. With Jordan we had to RUB HIS feet with ICE chips!!!! How insane is that!?!? God bless you guys today and praying that Par will be moved when he is ready!!!
Ok that above post is from me. Se what happens when both of your children start to talk to you at one time!!!:):) Allison
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