We've now confirmed our appointment with CHOP for next Tuesday. We are looking forward to the fetal MRI and hope it will tell us a lot more about the severity of our baby's hernia. Because ultrasounds are limiting, our doctor here was unable to tell us if the liver was "up" or "down" and the fetal MRI will be able to do just that. I will also be having an amniocentesis to check for chromosomal issues. Most likely, this has nothing to do with a chromosomal issue and it is something that just "happened."
Going to CHOP is primarily for evaluation purposes at this point--we hope that after gathering all of the information we will decide that UAB/Children's is the best place for us to deliver and take care of Baby Rich. It is hard to imagine being so far from our family and friends on such an exciting day. Although UAB/Children's doesn't see quite as many CDH babies as other hospitals like CHOP and SHANDS, Rusty and I have been following the progress of a little girl named Claire who was born here in Birmingham just over 3 weeks ago and she has already gone home with her parents--so we know the our doctors here are quite capable! We are hopeful to confirm an appointment at SHANDS in Gainesville, FL sometime very soon. After the "out of town" meetings, we will meet with the pediatric surgeon(s) at Children's here in Birmingham and hopefully then be able to make our decision for where to have our baby.
As for Baby Rich--he is VERY active lately. His karate kicks are getting harder and harder each day! I'm curious to see how he reacts to the fireworks tonight! Happy 4th of July!!!!
Subscribe to:
Post Comments (Atom)
1 comment:
Dear Liz,
My name is Vicki and I'm also expecting a baby boy (Jack) who has LCDH. We're going to deliver at Johns Hopkins in Baltimore. I found your blog through baby Claire's. We also have a blog for Jack: http://babyjackjensen.blogspot.com/
If you'd like to chat my email is victoriajensen@yahoo.com. If you haven't checked out any of the support groups yet there are links on Jack's blog. Breath of Hope and Little Lambs are really great (most moms post on both I think). Anyway, I'll add baby Rick to my prayer list. It's amazing how many babies have CDH. We didn't hear about it until Jack was diagnosed at 19 weeks. Oh yeah...I'm 32 weeks now so getting close!
Take good care of yourself and best of luck at CHOP & Shands!
~Vicki
Post a Comment