The difference a day makes...

and of course, lots of prayers.



I learned something important this morning--pray without ceasing and speak up for your child. Par's NJ tube was removed shortly after I arrived this morning, the nurse practitioner changed him to "eating on demand" and he had is MRI done at about 6:30pm this evening. I really don't know what to say. I went back and read my last post--it couldn't be any clearer how our Father really does listen to His children--we just need to ask and trust Him. Praise God for His endless blessings.

When I got there, our nurse had indicated that she had heard the discussion about the NJ tube and that they thought it should come out. Then the nurse practioner was called away and so the order was never written. That was disappointing--until our nurse said that we can't help it if he pulls it out himself...he extubated himself, he took himself off CPAP--it seems only fitting that he would pull his NJ tube out too (he actually pulls on it A LOT!) Unfortunately (or fortunately--we wouldn't want his nurse in trouble) he wasn't able to get it out...but thankfully the order finally came and so the tube came out--instant relief for our precious angel!





Par also had his hearing tested today and passed with flying colors! We are thankful but we aren't surprised--Par is SO alert and curious about every sound--he is great about turning towards people when they are talking and making eye contact--he looks so interested it seems like he has something to contribute to the conversation.



The nurse practitioner said she would probably turn his oxygen down to 100 tomorrow (keep praying) and see how he tolerates it--she indicated that he has a good chance of going home without oxygen (yay!) but still on his lasix--Dr. Kays tends to feel more comfortable knowing there is some form a lung treatment (the lasix is a dieuretic that helps keep fluid off his lungs).

We feel completely overwhelmed by everything that happened today--and Par is completely pooped, too! He loves his new eating schedule--you can tell he is way more relaxed now---even just after 12 hours. Glory to God for His gifts!



Please continue to pray for Par's friends--we ask that God will overwhelm them with His goodness and love.

May God bless each of you.

Love,
Liz, Rusty & Par